[Leah]

Originally Posted by Aquattro

Ya, she's 2 next month. It's challenging, but you grow into it. The couple of times she died in the living room and needed resuscitation were a bit stressful. We have a nurse in our house every night, also not a great thing, although the job of keeping her alive is a 24 hour job, and we need to sleep every now and then. Trach care every night, we travel with suction machines and emergency equipment, makes flights a bit tough. But we try to give her a normal kid life; we just took her to Costa Rica, where she took her first steps and played on the beach. All the bad aside, she's a great little kid and she's made me a better person.

Wow Brad,

That is heartbreaking! She is such a sweetie pie. I can't imagine the struggles you go through every day. My heart goes out to you all. Give her a extra hug from me...as if she does not get enough from you both.

Leah