Quote:
Originally Posted by Coralgurl
Sounds like your baby girl is still pretty young, and a smart little darling to me, sign language, amazing. I can't imagine how challenging your world is and pray each day she grows stronger, and you and your wife find your strength in each other!
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Ya, she's 2 next month. It's challenging, but you grow into it. The couple of times she died in the living room and needed resuscitation were a bit stressful. We have a nurse in our house every night, also not a great thing, although the job of keeping her alive is a 24 hour job, and we need to sleep every now and then. Trach care every night, we travel with suction machines and emergency equipment, makes flights a bit tough. But we try to give her a normal kid life; we just took her to Costa Rica, where she took her first steps and played on the beach. All the bad aside, she's a great little kid and she's made me a better person.