Quote:
Originally Posted by lastlight
Thanks again everyone. Justin I really appreciate you sharing that with me it helps me a lot. It will help her a lot when I can share it with her. She's sleeping right now. She joked tonight about balding before me. A sign she's strong right now.
I'm going to be forced to look at finances soon and I'm pretty scared. I'd lose my shirt on the house if I downsized right now. I'll have to cut costs and somehow keep us afloat. I'm not sure it'd be worth the effort but I may try and sell my system. I don't honestly know much about her condition yet bit I'm sure she can never run a dayhome again ( immune system) so things will be tough.
Thanks guys  |
No problem man...It's nice to talk to people who have gone through it already.
Please PM me if you want to talk or have questions. I can give you a call. Hang in there man. It gets better
Talked to my mom tonight and I was 5 when the problems started but actually they didn't think it was cancer at first because they said I was too young and actually my blood count was fine. It wasn't until almost 8 when I was diagnosed after having a paralyzing pain one night in my spine. That was just over 20 years ago now!
I won't get too much into this now as it seems a little inappropriate at this point but since you mentioned the dayhome...
It is rough on your immune system although when in remission and not on chemo, I don't get sick much. I think this is due to a few things, one, I take very good care of myself now and two, 3 years ago I had a bone marrow transplant which seems to have been very successful. I will never be able to repay my younger brother for the pain he went through to help me.
I take a drug everyday to "normalize" my white blood cell count (I make too many which doesn't allow enough red and platelets to be produced) and another to slow down the cancerous cells because even during remission they are still there. I take quite a few other pills daily for anemia as well.
But most days I feel normal and no one would know I have it.
I have now been told that although I will have to go for blood tests monthly, take pills the rest of my life, be careful with my immune system amongst other things, that I should live a normal lifespan.
Anyways, hope that helps. Its probably too much to think about right now but I thought I would share my experience. It always seemed to help me when I heard other success stories
