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SeaHorse_Fanatic 01-27-2012 05:37 AM
Quote:
Originally Posted by Aquattro (Post 675739)
But we try to give her a normal kid life; we just took her to Costa Rica, where she took her first steps and played on the beach. All the bad aside, she's a great little kid and she's made me a better person.
Sounds like you're giving her a wonderful life full of great experiences.

Aquattro 01-27-2012 05:39 AM
Quote:
Originally Posted by SeaHorse_Fanatic (Post 675741)
Sounds like you're giving her a wonderful life full of great experiences.
Ya, we try. You met her when she was confined to her car seat, here's a pic of her first steps while on vacation :)

http://i221.photobucket.com/albums/d...DSC_2292-1.jpg

lockrookie 01-27-2012 05:43 AM
Quote:
Originally Posted by Aquattro (Post 675739)
Ya, she's 2 next month. It's challenging, but you grow into it. The couple of times she died in the living room and needed resuscitation were a bit stressful. We have a nurse in our house every night, also not a great thing, although the job of keeping her alive is a 24 hour job, and we need to sleep every now and then. Trach care every night, we travel with suction machines and emergency equipment, makes flights a bit tough. But we try to give her a normal kid life; we just took her to Costa Rica, where she took her first steps and played on the beach. All the bad aside, she's a great little kid and she's made me a better person.
props out to you man .. i know a family with a special needs child and id like to kick the father in the head his child is so special but he would rather ignore him and go out drinking than to help his wife with him and their other child. but he will happily take gov handouts nad spentthe gov money.. peeves me off. i get a loving vibe from you on this. puts a smile on my face. thank youfro sharing that.

lastlight 01-27-2012 05:59 AM
Quote:
Originally Posted by Aquattro (Post 675742)
here's a pic of her first steps while on vacation :)
smiles don't lie she's a happy kid! Can't imagine how exhausting your situation must be at times Brad but you sound like awesome parents.

Aquattro 01-27-2012 06:05 AM
Quote:
Originally Posted by lastlight (Post 675744)
smiles don't lie she's a happy kid! Can't imagine how exhausting your situation must be at times Brad but you sound like awesome parents.
Ya, she's mostly happy. She had a rough start, so life for her is pretty good these days. As I said, you pretty much grow into the role, so while a typical parent might find it grueling, for us, it's mostly business as usual. We have to watch a lot of things, and there's always medical issues (did I ever tell you about our emergency stay in a Jamaican hospital??) :)
On a plus side, she doesn't yell at all, and stopped pulling her trach out at inopportune times. Overall a great kid, and we're lucky she's come as far as she has. It was really touch and go for the first 6 months, we pretty much lived at the hospital.

Delphinus 01-27-2012 06:14 AM
What a great picture Brad, and your daughter is beautiful. :)

Aquattro 01-27-2012 06:23 AM
Quote:
Originally Posted by Delphinus (Post 675748)
What a great picture Brad, and your daughter is beautiful. :)
Thanks Tony :)

SeaHorse_Fanatic 01-27-2012 07:28 AM
I remember meeting her. Beautiful little girl and lucky to have such devoted parents.

Peace my friend.

Leah 01-27-2012 10:26 AM
Quote:
Originally Posted by Aquattro (Post 675739)
Ya, she's 2 next month. It's challenging, but you grow into it. The couple of times she died in the living room and needed resuscitation were a bit stressful. We have a nurse in our house every night, also not a great thing, although the job of keeping her alive is a 24 hour job, and we need to sleep every now and then. Trach care every night, we travel with suction machines and emergency equipment, makes flights a bit tough. But we try to give her a normal kid life; we just took her to Costa Rica, where she took her first steps and played on the beach. All the bad aside, she's a great little kid and she's made me a better person.
Wow Brad,

That is heartbreaking! :cry: She is such a sweetie pie. I can't imagine the struggles you go through every day. My heart goes out to you all. Give her a extra hug from me...as if she does not get enough from you both. :wink:

Leah

jorjef 01-27-2012 11:27 AM
Quote:
Originally Posted by Aquattro (Post 675739)
she's made me a better person.
Most parents have the luxury of nine months of preperation for the arrival of their children, your wife and yourself never had that. Some parents may have been overwhemed at the thought of raising a child needing special care and given the them up for adoption, you never did that. Some parents would grow distant from their spouse and resentful to life in general, I don't think you have.

I don't think she's made you a better person, your qualities were always there, she is just providing the polish to make them shine. From one parent to another my hat is off and I salute you.


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